Lately, I have had to stop in mid-sentence to try and recall what I was about to say or continually ask the same question, knowing I was given the answer multiple times, but I just can’t recall what it was. I do not like repeating myself and I don’t like asking others to repeat themselves. When this happens, I am tripping over myself apologizing and having to explain that sometimes the “brain fog” of Fibromyalgia is real and not an excuse for not listening.
It’s like leaving the room you’re in, to go get something from another room, but you feel like the rooms have moved and you have no idea how to get there from where you are. You think you must be losing your mind because you can’t keep track of simple details. It’s maddening, for me. Sometimes the “fog” is like a haze. I stumble through my day, writing myself notes and writing everything down because I don’t want to ask again, and then misplacing the notes, only to find out they are right where I put them.
And going to the grocery when the “fibro fog” has settled in for a spell is a whole new thing. I must write everything down I need. If I do not put pencil to paper and notate it, even if it’s only two items, I will not be able to recall it. I used to be able to remember the smallest of details. My mind was sharp. It’s frustrating because you never know when it will happen.
I play word games with friends and read to keep my mind active. I am working on teaching our grandson letters and numbers that he will need for preschool. I think the most frustrating part of this “fog” is when I forget something that is really important. There are no do-overs. Apologies can be given, but how many times will that happen before people will stop relying on me?
I have always been able to stay on task and now I start something and don’t finish it because I forget what I started and move onto something else. Then I realize a few days later, I need to finish what I started. As I said, for me it’s maddening. The only solution I have found that truly helps is prayer. When I pray to Jesus and ask for His Peace to help me remain focused, I can sit with Him and just let His Peace wash over me.
Philippians 4:6-7New Living Translation (NLT)
6 Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. 7 Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.
Before I retired, I could work with vendors, keep track of all the details of a delivery, write up reports and take care of details, like a boss. Now, all the details seem to blur together and I have to sift through them to figure out what is important and what is not.
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I often wonder if this is how people that suffer from dementia feel. If this is the same type of feelings they go through when they are searching for the right words to communicate their needs. It is scary to think that a disorder such as Fibromyalgia could affect my brain in this way. Fibromyalgia is full of surprises. It’s kind of like the line from the Forrest Gump Movie, My momma always said, “Life was like a box of chocolates. You never know what you’re gonna get.”See Footnote.
Lifting the Fog of Understanding
Fibromyalgia is a lot like that. You never know what you will get. I can guarantee from my point of view, though, it will not be sweet or delicious, as that chocolate might be. This fog that I live with does lift from time to time and I am very thankful for that. I can’t imagine being in a haze all the time. It’s like trying to look through the thickest pair of eyeglasses there are (remember the term “coke bottle glasses”), and they are all smeared because you tried to clean them with a tissue that had lotion in it. No matter how much you try to rub the smears away, it just makes matters worse. That’s what the fog is like for me.
As with any symptom I face, I seek out the Lord and rely on his Word to pull me through when the days are tough to manage. When I want to give up and throw in the towel, I remember how much Jesus loves me. I remember that he has a plan for my life and I keep pressing on, knowing that the trials and afflictions I am facing now, prepare me to comfort those and encourage others that are in this silent battle. I am a warrior. I battle daily to live a normal life. I joke with others about old age and memory loss, as a way to cope.
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If you find that you, too, suffer from this thick, dense “brain fog” due to Fibromyalgia or another illness, know that you are not alone. As a warrior with a chronic, life-long illness, it is easy to have feelings of hopelessness. Remember Jesus is our Hope. Cling to Him. He will bring you through every trial you face. #HopeAlways#HaveFaith
John 14:27New Living Translation (NLT)
27 “I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.
Lord Jesus, help all of us that suffer from “brain fog” to remain clear and concise, to discern what is of you Lord and what is not. I ask that you pour out your Peace upon us, the only true Peace there is and help us to stay calm through the storms. In Your Mighty Name, Jesus. Amen.
May you know how much Jesus loves you and may your cup overflow with blessings!