Category Archives: Summer

Days Gone By

As I sit here, I just can’t believe that summertime is over and school is upon us. For some districts, their school has already started. Our summer break didn’t go exactly as planned, but we still managed to squeeze in a few days at the Columbus (Ohio) Zoo and Newport (Kentucky)Aquarium.  Tyson had a blast and that was our hope. A great way to end the summer before starting all-day kindergarten this year!

Tyson Berwin Park

Climbing down -because he never does things easy.

As I look back on the past several years and read some of my past blog posts, I am amazed at how far Tyson has come. When he entered preschool two years ago, at the age of 3 he had 24 words and some of them weren’t even true words, but sounds he made for something.  Now at the age of 5, he not only has unlimited words in his vocabulary but is speaking in multiple sentences at a time!!! We are so thankful to the many speech therapists that have worked with him and continue to work with him on articulating each syllable he speaks. He used the word “very” quite often but still says “berry”. And somewhere along the way, this child has come up with the phrase”not quite yet” when asked if he is ready to do something or finished with it.  It is quite comical because he is ever so serious when he says it.

He is very excited to be going to Kindergarten. He will be in a Special Education Resource Room for most of his learning time, but as he excels in areas or becomes proficient, he will have the opportunity to spend time with his neurotypical peers in another classroom, as well as going to gym, music, art, library, and lunch with them.

Four more days and he will be boarding his schoolbus and starting his adventure for the year.  To say that I am excited, would be an understatement.  I love him with my entire heart and then some, but I am ready for my own break from him.  He is so full of energy and inquisitiveness, this grandma is ready for some downtime.

A friend asked me if I thought he would do well in an all-day class and quite frankly, I think he will be amazing. He THRIVES in a structured environment.  The night of the school open house, it took a long time to get him out of his classroom. So many things to see and do. The hardest part of the whole day will be getting him up very early (for him) to get ready and eat before his bus comes.  I am sure he will be one of the children that will fall asleep on the ride home.

Over the summer, other changes have taken place. Our son moved back home, with a new puppy, that is not trained yet. He is a beautiful dog, but still very hyper and having one hyper “boy” in the house does not help the dog calm down. I keep praying a magical fence will appear around the yard and then both boy and dog could run until they were too tired to move.

Psalm 62:5-8 New Living Translation (NLT)
5 Let all that I am wait quietly before God,
for my hope is in him.
6 He alone is my rock and my salvation,
my fortress where I will not be shaken.
7 My victory and honor come from God alone.
He is my refuge, a rock where no enemy can reach me.
8 O my people, trust in him at all times.
Pour out your heart to him,
for God is our refuge.

As I recover from the medical problems I experienced in June, the Lord and I have been spending more time together and this is exactly what I needed. The waiting game has always been a hard thing for me. I am great at telling others that God is in control and everything in HIS timing, but I am not very good at following that advice for myself. I have never had this long of recovery time after having a cellulitis infection, ever. And then I remind myself, it just wasn’t the cellulitis. The lingering memory problems from the sepsis is one of the struggles I am having. I know memory problems come with age, and I totally get that, but the struggles I am having makes me feel like I have dementia some days. My husband can tell me something, and the moment I turn from him and walk away, I forget it. I then ask him about the same thing and he becomes agitated because he JUST told me about it. Now,  I am trying to repeat out loud everything he tells me in the hopes I will retain it in my memory.

Short term memory and cognitive problems are a known response to having

sepsis/septic shock in your body.  The fatigue isn’t anything new. I’ve lived and dealt with fatigue for over 10 years due to the fibro. I’m used to fatigue, it’s just that I used to be able to walk more with my cane and now everywhere I go, it’s my walker or wheelchair. I keep doing my home exercises and getting out as much as possible to build my strength. My therapists and home nurse, before discharge were happy for me and all the progress I am making, but being the person that doesn’t like being out of control, I am struggling to see the progress. Today, I woke early (8 a.m.) and haven’t taken one nap all day.  I guess I am making progress. I will be calling first of the week to have the hospital bed picked up, as now climbing our stairs is possible.

Life happens. It goes on. Even if we aren’t ready for it to go in the direction it heads. Jesus is at the helm in my life. Sometime’s as life happens, I am reminded that I truly do need to rely on HIM for everything. Sometime’s I need to slow down and take care of me.  In my mind, I know I can’t take care of others if my well is dry, but there are time’s things happen that remind me of this fact. My well is slowly filling up, and as it slowly fills back up so I have all the love I need to pour out on others, I will learn to be still and wait on the Lord.  I am forever grateful for the people the Lord places in my life to remind me that progress, no matter how imperfect, is still progress.

May you know how much Jesus Loves you~right now as you read this and always. Jesus can turn any mess in our lives into a message and any test we face into a testimony. #HopeAlwaysHaveFaith

Blessings~Carlene

 

 

 

 

Family Time

This past week, we loaded up our Yukon and drove 989 miles in searing heat with no air, except for the wind whipping around in the truck with our windows down. As humid and hot as it was, and all the perspiring going on, we should have melted the pounds away.

When you travel with a child that has special needs and an adult with respiratory problems, you feel like you’re packing the entire house for a weekly excursion. Loading the truck with suitcases, a medicine bag for several people, mobility devices and a bag of toys/books to keep everyone satisfied….checking lists off twice, it’is not as easy as it sounds. It takes almost an hour to load everything and then you pray you didn’t forget anything.

Our family, except for our daughter and fiancee, secured in our seatbelts and car seats made the normal 15-18 hour trip in 21 hours. Longest 21 hours of my life so far.

I love the state of Florida and someday when I’m old and gray, I hope we can call Florida home again. Ok, I’m old and I do have some gray strands peeking through, but Tyson is doing so well in Ohio and is all set up with his therapists and specialists that moving is very daunting. I’m not sure I could talk his mom into leaving her friends in Ohio and I know I couldn’t handle being too far away from him or our other grandchildren.

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Tyson loved the pool and we tried to go every day while there. At first, he was hesitant, but once in, getting him out was almost impossible. His Uncle Mike made it fun, taught him to close his eyes and hold his nose to go under the water. He loved jumping from the steps with his swim vest on and spinning in the water. This was a great way to expend his energy before our nightly dinners and almost always ensured he would drift off to dreamland.

When your only living parent lives almost a thousand miles away, you cherish the time you have and if you are even a little bit emotional like me, find it hard to say goodbye. I kept my tears inside and thought about how blessed I am to still have our mother here and so very thankful to have spent the 7 days with her. Great memories were made and all of her neighbors doted and loved on Ty. Providing him with toys to use while there and yummy snacks any toddler would love.

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We visited a great Thai rolled ice cream shop in downtown St. Petersburg called Ice Burg. We watched as they made the specialty treats. It was worth the drive downtown just to try it out! Very filling for low prices.

We ventured to a fenced in play area near Gulfport beach in Pinellas County and Ty was able to access a small beach area with sand and shells. For the past few months all he has talked about was going to the beach and building sand castles but as it turned out, that was the only beach he would visit. He didn’t want anymore to do with beaches only the pool. Maybe one day he will relish the sand and surf.

You never realize how much you miss your mom’s home cooking until you are eating it. We ate out twice while there..the rest of the time was savoring the smells wafting in the air as she prepared meals. My mom is an amazing chef!

As we embark on the road trip home, I’m so very thankful to Jesus for keeping us safe. We’ve been on the road for over 8 hours now and thankful my husband and sweetheart is good at driving and navigation; he used to drive for a living.

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The biggest takeaway from this post. Enjoy the time you have with your family. Love one another, laugh and cherish each moment you are blessed to have.

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Don’t just pretend to love others. Really love them. Hate what is wrong. Hold tightly to what is good.
Romans 12:9 NLT

May you know how much Jesus Loves You~right now wherever you are!

Blessings~Carlene

#HopeAlwaysHaveFaith

Summertime

I remember hearing a song growing up, part of the lyrics were ‘summertime and the living is easy…….Summertime  by  Ella Fitzgerald, that’s all I remember of the song, but I remember the memories that come back when I hear that song. Memories of school being out for the summer and the fun of going to summer camp, spending it with my friends and learning a new craft or riding horses, singing songs by the campfire, telling stories, some true and some not.  Summertime always was a time to gather with friends and family, go to family picnics and reunions and catch up on the news of each family.

As I reached adulthood, it seemed like Summer was just another season, and nothing special happened or at least not very often. Times have changed where everyone is in a hurry now, there are deadlines to meet and the thought of making special plans to get together with family and friends isn’t as easy as it once was. It’s no longer a 9 to 5 world, where your weekends are your weekends to use how you see fit. Everyone works different schedules and times and as much as all of us want to connect and reflect on our lives and where we have been, what we’ve been through, where we are headed-it’s not as simple as it sounds.

SUMMER

Summer also signifies the hot season for most of us. A time to go to the pool  or water park and cool off after a long day of work; cooking meals on the charcoal or gas grill, sipping iced tea or lemonade on the front porch and waving to the neighbors as they go by.

Summer is one of my favorite seasons of the year.  If I could escape winter and spring I would; however living in Ohio does not afford me that luxury at this time.  So when summer temps hit the area, I get excited. No more wearing bulky clothing.  I can drag out my skirts and capri pants..  And the best part is hardly any shoes.  Just flip flops.  Pull my hair up in a ponytail until I can decide how short to get it cut and feel free. We have bonfires in our backyard area, roast marshmallows and enjoy time with family and friends when we can. It is so peaceful to hear the fire crackling and the crickets chirping. Chasing fireflies with our grandchildren and seeing them get so excited as they place them in the jar for a bit!

Summer is also a great time to go to amusement parks or zoos and see the sights and sounds.  Going fishing and just spending time in nature. Not that you can’t accomplish these things in winter or spring, but for me it’s all about summertime.

When the first day of summer hits, summer solstice, the longest day of the year, it signifies days where the sun is up longer than in the winter. Winter time can be a time of the blues, if you don’t get enough sunshine in your life, depending on where you live, of course.

So, now you know why I enjoy the summer months. Autumn is my other favorite. Seeing the changing of the colors and enjoying the beauty God gives us each day.  What is your favorite time of the year and why? I would love to know.

Thanks for stopping by. Blessings to all of you and remember Jesus Loves You!