Giants

Jesus spoke to the people once more and said, “I am the light of the world. If you follow me, you won’t have to walk in darkness, because you will have the light that leads to life.”

John 8:12 NLT

 

All of us have dark times in our lives, times that seem hopeless and we feel that no matter what else happens, we will stay stuck in that dark place. It’s easy to let feelings like that wear on you.  I have had those feelings lately.

And in the midst of those feelings of despair and depression that takes hold and doesn’t want to let go, Jesus is there. He is my Hope. He is the reason I don’t give up and I don’t quit.

There have been many days that I would rather, pull the covers over my head and go back to sleep than have to get up and face the day and all it holds and that is exactly what the devil wants. He wants me and you to believe that nothing will ever be better and the feelings of hopelessness will consume us and everything in our lives. That is why it is so important to stay in The Word; to spend time with the Creator of the Universe.

Jesus came to earth as a baby, born to man, to save us and give us everlasting life. This life we live here on earth is temporary. This is not our permanent home. I know sometime’s I forget that. He endured hardships, trials, struggles and yet even though he never sinned, not once, He died on a cross, bore the sins of the world so that once and for all, sin would be no more.  He shed His blood for me. For you. He did this so you and I could have life and that through Him we would live forever with Him in eternity.

There have been many times lately, that I have hoped for that eternal life. No more pain, no more tears, no more frustrating times. He has a plan for our lives. And in the midst of those plans, heartbreak happens. But if we put our faith in Jesus, He will see you through it all.

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For the past several weeks, in our home, we have battled with our grandson. He requires a lot of patience and understanding. Living with a child that is autistic, you never know from one moment to the next what will happen. The demands of a special needs parent/caregiver are great.  And until you go through it, and take that walk, you can never fully comprehend all it encompasses.  It’s not an easy road.  Teaching him requires thinking outside of the box. His learning styles are vastly different from other children his age.  He processes information more slowly than most.  And just when you think you have him all figured out, when you know what upsets him or throws him into a sensory overload, you are right back to where you don’t know as much as you thought.

We love him immensely, but there have been many times, I have asked God, “Why?” Why is he one of the many that have to have these struggles? Why couldn’t he be normal? Why do we have to keep the same routines, no spontaneity allowed in our life, because this will set him off? Why must he have sleepless nights, with night terrors? Why do bright lights and loud noises hurt him so much? And while there have been no concrete answers, I was reminded of the story of the man born blind who was healed by Jesus and saw for the first time (see John 9 for the details).

I know that God has a plan for Tyson and his life. I may not understand the plan, I may have a hard time coping with what he goes through each day, but I have a God that is bigger than any problem that comes our way.  Through Tyson, I see the world through different eyes. Even through the tears, I am reminded that Jesus is with us. And with him. And how much he lights up when I talk to him about Jesus. While I may never fully know how much Tyson understand or comprehends, I know he knows Jesus. Worship music soothes him. Going to church and learning about Jesus makes him smile.

Tyson reminded me, late Sunday afternoon, how much he loves being with others that love Jesus too.  My husband and I woke up early Sunday morning, and quietly prepared to leave the house to attend church. Usually, we wake Tyson and take him with us, but I was being selfish and I wanted a break.  A break from chasing him and fighting with him to get in his carseat and stay buckled in. A break from his mood swings and impulsivity; so we quietly got ready to leave, leaving him to sleep with his mother and left without him. Later in the day, as he sat on my lap, telling me over and over, “I love you mamaw,” he looked at me with a sad little face and said, “you go church?” When I replied, “yes, papaw and I went to church,” as his tiny little lip quivered, he exclaimed, “I go church!”And I had to tell him no, not this week. He cried. And I realized then, that my selfishness caused him pain. The last thing I ever want to do. And I also realized that this tiny 4-year-old has a love for the Lord and even though it may be a struggle getting there, I won’t withhold that from him anymore.

During the sermon Sunday, the pastor reminded me that all of us must have the sincere faith and love that a child has for Jesus. A child isn’t afraid to ask and make requests, no matter how outlandish they may seem as we grow older. Children aren’t cynical like most of us, mainly because they haven’t had the life experiences we have had and take Jesus at His Word. Isn’t that how we should all be? Jesus came so that we could have life, and have it abundantly! He died on a cross so we could have eternal life! We should have nothing to fear because we have Jesus!

Worry can consume us, which becomes fear of what may happen, but Jesus tells us that He will always be with us, He will never leave us; never forget about us.  What a promise to take hold of and help us as we go through our days! He is the living water, and we will thirst no more!

John 7:38 New Living Translation (NLT)
38 Anyone who believes in me may come and drink! For the Scriptures declare, ‘Rivers of living water will flow from his heart.’”

I am forever grateful that I have a Savior that loves me unconditionally and is always available to me, no matter the time of day.  He is available to you too!

Luke 11:8-9 New Living Translation (NLT)
8 But I tell you this—though he won’t do it for friendship’s sake, if you keep knocking long enough, he will get up and give you whatever you need because of your shameless persistence.[a]

9 “And so I tell you, keep on asking, and you will receive what you ask for. Keep on seeking, and you will find. Keep on knocking, and the door will be opened to you.

Trust in the Father. Have faith. Hope Always.

May you know how much Jesus Loves You~right where you are-in this moment!

Many blessings~Carlene

 

 

 

 

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Living with an Invisible Illness

Psalm 28:7 New International Version (NIV)
7 The Lord is my strength and my shield;
my heart trusts in him, and he helps me.
My heart leaps for joy,
and with my song I praise him.

 

I am so thankful Jesus is with me daily. His Holy Spirit resides within me. He keeps me focused when the pain is too much. When the bed seems like the best place to spend my days, he reminds me that whilst I can spend an unlimited amount of time with Him lying in my bed, it’s more difficult to share His love for others from that position.

A little over a year ago, I was in a different place, physically. I was feeling pretty good, my fibromyalgia was held at bay with amazing supplements I was using to heal my body from the inside out.  I truly had forgotten, although I can’t imagine how I could ever forget, the all-encompassing pain that runs through your body when you live with Fibromyalgia. I was walking and moving a lot faster than a snail’s crawl which is how I feel now. It was my hope back then when the pain wasn’t as noticeable, fatigue was held at bay and I felt like a normal person, that I would never endure this painful condition again. I wasn’t afraid to go places and try new things for fear of a flare-up and intense pain that might last for days and weeks.

fibro3

I’ve thought long and hard about posting any of this because I truly believed I didn’t have to deal with it anymore. It was a thing of the past. Unfortunately, I know in my mind, as well as my body, that if I am not consistent in using the supplements, eventually my body would go back to what it was and the supplements alone were not enough for the change to take place. I was eating healthier and getting some exercise. As much as I knew this was inevitable, I had hoped and prayed the muscle aches, the pain, the fatigue/insomnia would not come back. Instead of having the sheer exhausted feeling of fatigue, now I am plagued with insomnia. It’s crazy!

But, I push through. I will not quit or give up. That’s not me. I’m not wired that way. Thank you, Lord, that I am not. Thank you Lord Jesus for giving me the strength and determination I need to keep putting one foot in front of the other, no matter how difficult or slow I may be. And watching people much older than me zoom by me in the grocery store or in a parking lot, makes me realize how slow I am moving. However, I AM moving. So very thankful that is the case and I am not in need of a wheelchair.

And because I guess my hand/wrist felt left out of the pain equation, the carpal tunnel is back with a vengeance. I’m back to using a night splint and sometime’s using the night splint during the daytime so I can function again. I never did learn how to use my non-dominant hand to write with. I wonder if that is even possible at my age? OR if I am too set in my ways to take the time to learn?

My internal temperature gauge is stuck in cold mode. I am rarely warm, no matter how many layers of clothing I wear. This totally sucks. I tried to think of a better way to say it that didn’t sound rude or unbecoming, but it sucks. Plain and simple. That’s why I always try to get my hubby to drive everywhere; his vehicle has heated seats.

I guess the hardest part of living with Fibromyalgia is you never know from one day to the next how you are going to feel. Knock wood, the osteoarthritis in my knees and hips are manageable at this time. The degenerative disc disease in my lumbar spine is worse. And the spill I had a few weeks ago, trying not to fall mind you, hasn’t helped.

Because of respiratory problems I live with, I cannot take pain medications to help with my pain. This causes problems with my breathing. Slows it down too much. So I rely on Jesus to carry me through the pain. I spend a lot of time sitting, with my legs propped up as much as possible and I long for the times when I was able to be an active participant in the lives of my family and grandchildren. I have four amazing grandchildren, one lives with us and I am blessed to see him grow and bloom before my eyes. The other three are several years older, involved in extracurricular activities and I haven’t been able to attend any of their outdoor events this year.  It makes me very sad. I love them so much and as much as I know they try to understand, I feel as if I am cheating them somehow and I HATE this part of this disorder/disease.

The other three have known for years that I can’t run and play with them the way their grandfather does. But I have always been able to go before. Now the cool weather is just too much for my body to handle. But I am so very proud of them for everything they do and someday when they are much older, I hope they will know without a doubt that if I could I would have been to every single thing they were involved in.

I push myself many days to get up and get dressed. Put on my “happy” face and “fake” it. I know living with me when I am in pain, is not a walk in the park. I become irritable and grumpy and short with others. I do my best not to let this side of me come out from behind closed doors, but it is so difficult because some days just getting dressed wears me out. The thought of running to the store to grab a few things is exhausting just thinking about it. It’s great if the store you go to has electric carts for customer use, that actually work and will last for the entire time you are in the store, but many are used so much they never have a chance to fully charge and the only thing worse than not having them available is using them to shop and the battery dying in the middle of your  shopping trip and then it’s like being stranded on an island in the middle of nowhere. Now you have a full basket of goods, but no cart in sight to transfer them to.

The single most agonizing part of the widespread pain returning is the muscle spasms that come, out of nowhere. I turned my head earlier to look at something, not quickly, but as I turned my head, a sharp muscle pain and I just had to wait for it to pass. And I get these spasms throughout the day, everywhere. Many you cannot just walk out. Most of the time you just have to wait until your muscles relax. It may be myofascial pain. I’ve been reading about it. This is something I will have to ask my physician the next time I see her.

I have many friends that live with Fibromyalgia and as much as we can be there to support one another, all of us live with it and have varying symptoms to varying degrees. Many of my fibro friends, can’t stand the hot weather or warm temperatures, drains them and all their energy. For me, I am completely the opposite. I love the heat. The hotter the better. Cold weather sucks the life right out of me. There isn’t a coat or blanket warm enough to keep me comfortable. And of course, I live in a state that is known for unpredictable weather.  One day it’s 80, the next it’s 40. It’s no wonder I feel so cold, right?

2 Corinthians 1:3-5   New International Version (NIV)

3 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. 5 For just as we share abundantly in the sufferings of Christ, so also our comfort abounds through Christ.

I am thankful that I have Fibromyalgia because then I know how to extend comfort to those who deal with it too. I know that God allows us to go through many things in life as a way to be a testimony to others that put their hope in Him. I can still be a light to others by encouraging them, no matter the type of physical pain they experience because our earthly bodies are temporary. This is not our home. We are citizens of Heaven. But I also know that He does not expect us to suffer alone in silence. We are all made for relationship. Relationship with friends and family. All of us have a need to be part of a community, that is loving and supportive. And while all of us can be less than loving and supportive at times in our lives, that is where grace comes in. God gives us grace because He loves us, not because of anything we can do to deserve it. We all fall short in that area. All of us.

Be kind to others. Love them. No one, except for Jesus, knows the internal struggles and battles each and every one of us faces daily. And for each of us, no matter the battles, they can be debilitating if we forget to lean on The One who gives us life. The most important relationship you will ever have in this life is the one you have with Jesus. In my opinion.

Psalm 100:5 New International Version (NIV)
5 For the Lord is good and his love endures forever;
his faithfulness continues through all generations.

May you know how much Jesus Loves You~right now~here in this moment and always! Jesus can turn any mess into a message and any test into a testimony! #HopeAlwaysHaveFaith

Blessings friends~Carlene

 

 

If You Could Do Anything, What would it Be?

The other night in a women’s Bible Study group, the question was posed ” If you could do anything you wanted, financially there was no limit and God had paved the way and gone before you, what would you do??

Serve only the Lord your God and fear him alone. Obey his commands, listen to his voice, and cling to him.- Deuteronomy 13:4 NLT

There were a lot of great answers and I selfishly said, I would want to go away and take a break! And at that moment, I meant it.

But I have been giving that question a lot of thought since that night because we all have hopes and dreams, things that we think are way too big or too impossible and I realize that with God, NOTHING is impossible.

27 And Jesus, looking upon them, said, “With men it is impossible, but not with God; for with God all things are possible.” – Mark 10:27 21st Century King James Version (KJ21)

I believe that sometime’s we get so caught up in the day to day busyness of our lives, no matter what that busyness looks like and we store away our hopes and dreams for ‘when the time is right’ or ‘when I have enough money’ or ‘when our kids are grown’ or ‘once I get that promotion’ and I know that is not how God intended for us to live.  Always thinking that we have to wait until everything is perfect before we try something new, fulfill a lifelong dream, reach for an unreachable desire in our hearts.

I love ministering to others by sharing my story, here, and in person of how my life has been touched by Jesus Christ. I love encouraging others and sharing what it is like to walk by faith and not by sight. My heart is full when friends ask me to pray for them or a situation or share the Word with them.

Follow Your Heart

God will use anyone how He chooses.  The fact is we have to be willing and we have to be obedient to His call. Many people hear from the Lord in a number of ways, and those ways are just as different as there are people to hear Him. I feel a nudge in my spirit to share a message or word He gives. And sometime’s I understand what I am to do and I don’t always obey because fear sets in.  Fear is a tool of the enemy.  The devil will use any tool in his power to stop me in my tracks. Doubt may creep in and I worry more about how I will look, and what people will think, more than caring about The One that nudges me to go and do His work. Sometimes it doesn’t have to make any sense to me.  But I still need to do it.  Walking in obedience to the Lord should be the easiest thing for any of us to do, but many times the chaos of our lives shuts out His voice.  Until we think we need Him and then we wonder why we can’t hear Him. He is always with us and always waiting to connect with us through every part of our lives and always listening.

I still don’t have a solid answer for what would I do if money was no object and God had blessed my vision for what my lifelong dream would be, so I will be still in the waiting and seek his guidance. I do have thoughts, but nothing concrete. I can say, without a doubt it would be geared toward people that have special needs due to a medical/disability diagnosis, but exactly what they type of ministry would it be, I don’t have all the details yet, just a burning fire within me to help these groups of people and it really isn’t any wonder since I love and care for someone that is very special to me and has very special needs.

I would like to encourage you to pursue your dreams. Find something you love and go do it! Because God will give you all the tools you need to fulfill your wildest and crazy dreams; He places those desires in your heart.  It will take grit, determination, and perseverance and there may be times you think you got it all wrong, but this is where your faith comes in.  Faith is believing even when you can’t see!

I do know from my own point of view, I’ve had a tugging at my heart to do something for Special Needs Individuals, that isn’t out there yet-I just have no idea what it is at the moment. And more than just the little guy in our lives that requires so much.

I learned a long time ago, that if you are doing what you love, you will excel at it; if you are working just to earn a paycheck and you hate it; it’s not where you are supposed to land forever.  It may just be a stopping point along your path, to help you grow in an area that needs growth.  God doesn’t have us anywhere to waste our time.  There is always a purpose. And when the time is right, God will have you move and go.  Don’t fear the going. Trust in your Creator.  He knows everything about you.  Everything.

Ministry-serving others can happen anywhere. In our homes, the grocery store, a foreign land, in our day to day with others. We are called to spread the Good News of Jesus Christ and His story.

May you know how much Jesus Loves You ~ right where you are ~ in every moment of your lives! #HopeAlwaysHaveFaith

Blessings ~ Carlene

How Did I Get Here?

The past few weeks, I have run the gamut of emotions. Some happy, some sad, mad and angry and some so mixed up I am not sure how to process them, so I sit and I read and I pray. I turn to the Father and seek His guidance. I converse with Godly counsel and friends that love the Lord as much as I do and ask for prayers and wisdom. Doing my best to discern what is from Jesus and what isn’t.

I grew up knowing Jesus. There was never a time in my life I didn’t know about Him or forgiveness, grace, mercy, and unconditional love. And even in my darkest moments, when all hope seemed lost, He was there. He has always been right beside me, His Holy Spirit dwells within me. And just so I don’t sound all high and mighty here, and keeping it real, sometimes knowing all that, I have still tried to figure stuff out on my own, and believe words spoken over me or people’s opinions that belittle me and not stand up for what I know to be TRUTH.  It’s easy to allow it to happen if you don’t remember WHOSE you are.

Life isn’t easy and Jesus never promised that it would be. But He did promise that He would always be with us. He would be our strength because His strength comes through in our times of weakness.

Philippians 4:13 New Living Translation (NLT)
13 For I can do everything through Christ,[a] who gives me strength.

In the past several months, I have had many moments where I just want to chuck in the towel and give up. And I hate that feeling.  Sleeping was easy. No problems for me to deal with, no solutions to come up with, no hurt feelings to soothe, just sleep. And that would be a pretty good plan if life didn’t keep moving on and every task for the day was done, but in my world, the real world, sleeping all day is not a healthy thing to do unless I’ve had a flare up with my fibromyalgia, or I am sick or I am so exhausted I just can’t take one more step. Meals need to be made, laundry needs to be done, errands need to be taken care of, family needs to be loved and appointments need to be kept, therapies to go to and the list goes on.

I am a positive person. No matter how bleak things appear or seem, I can always find a bright spot, a sliver of hope. Nothing can be as bad as it seems, and even when it is really as bad as it seems, I choose to trust in Jesus and God and know on faith that God will take the bad, tragic and sorrowful times of our lives and use them for good.  I’ve experienced it. And that’s a promise in His Word (Romans 8:28)

I have difficulty encouraging myself. Many times I just want to let someone else carry the load. I want a break. I need a break. I never imagined at 53, I would be where I am right now and yes, it could be a lot worse than what it is. When we are struggling in any given moment, it seems like it could be the worst low we have ever encountered. And crawling out of the deep dark hole isn’t as easy as it seems. In moments like this, I usually have to shift my perspective, and at times, I don’t want to. I’m tired. Emotionally, more than physically.

I hadn’t planned on being retired and spending most of my waking moments with only the people I live with. I love them, they are my family, but I am a people person. I love having conversations on a variety of topics, I love being challenged to do things I didn’t think possible.

This video from Mercy Me helps me get through some of my darkest moments. It reminds me where my Hope lies.

I didn’t realize that the extreme pain in my lower back would stop me from being able to live the life I so desperately want. And I am not talking about anything exciting or adventurous either. Simply to be able to go to the store, or take a walk more than 10 feet and have to stop and sit. It’s horrible having this continual pain. I hate thinking about it and living with it. I want to lose the burdensome weight I carry on my frame, but to do that I have to be able to exercise, along with eating right,  and while chair exercises are a start, they don’t do much for losing weight. Surgery to repair the damage from the degenerative disc disease in my lumbar spine area is not option until such time as I lose a significant amount of weight and my circulatory problems improve. And there have been many loving suggestions from family and friends. I did consider bariatric weight loss surgery, but that would require at least 5 to 6 weeks of recovery with rest and I can’t even get a few days of uninterrupted rest let alone 5 to 6 weeks.

When I injured my knee and tore the meniscus I was told surgery was not an option because of my health and I felt in such a conundrum because if it was too high risk for surgery to repair my knee, why was it okay to have surgery for serious weight loss? It was safe for one but not the other??

Water exercise is great if you have a pool. But if you have to go to a pool, and pay for use, that can be quite costly living on a fixed income that is stretched as far as it will go. Feed your family, pay your bills or go exercise in a pool of water. It usually isn’t a hard choice to make. We have to have electricity, hot water, and food. We have to have a roof over our heads and we have to be able to take care of a little guy that can’t care for himself.

It’s the days when the pain is hard and other’s aren’t feeling well either, those are the most difficult to get through. But, I get through them. So thankful for Jesus. HE is the reason I have made it this far. I am still walking, slower than a snail, but I am walking. I think of the many things I have to be grateful for. I put on some worship and praise tunes, I make a list of who and what I am grateful for and yes, sometimes I sleep.  And ever so slowly, I find my way back to hope, encouragement, and realize everything I go through is just part of my journey.  What I deal with personally and what I go through, helps me to see life from different perspectives. I have been on both sides of the pain.  The times when my pain was manageable and the times when it nearly knocks me out of the game. I work through the depression, talking it out with loved ones, trusted confidants and Jesus.

Currently, I do not take medications for depression. I did at one time when the pain was so great every single day that I needed it. There may come a time when I will have to again, and if that time comes, I will do what I need to for me.

I think of the times Jesus was depressed. I think of the days before His crucifixion when He knew the pain He would endure and how sad and sorrowful he must have been. I think of Him being nailed to a cross and being suspended on that cross and I realize that no amount of pain I go through will ever compare to His. That image in my mind helps me. It helps me remember that my time on earth is temporary. This body I live in is temporary. One day I will have no more pain. I will cry no more tears of sadness, only tears of joy. Until that time comes though, I will minister to others the only way I know how and I will listen, comfort, share my thoughts and opinions and love the life I have. Part of growing in the Lord and living by faith is trusting in what we can’t see and believe in what Jesus has promised.

May you know how much Jesus Loves You~right now in this moment~wherever you are. Jesus can turn any mess into a message of hope! #HopeAlwaysHaveFaith

Blessings my friends~Carlene

 

 

My Catherine the Great

Proverbs 31:11-31 English Standard Version (ESV)
11 The heart of her husband trusts in her,
and he will have no lack of gain.
12 She does him good, and not harm,
all the days of her life.
13 She seeks wool and flax,
and works with willing hands.
14 She is like the ships of the merchant;
she brings her food from afar.
15 She rises while it is yet night
and provides food for her household
and portions for her maidens.
16 She considers a field and buys it;
with the fruit of her hands she plants a vineyard.
17 She dresses herself[a] with strength
and makes her arms strong.
18 She perceives that her merchandise is profitable.
Her lamp does not go out at night.
19 She puts her hands to the distaff,
and her hands hold the spindle.
20 She opens her hand to the poor
and reaches out her hands to the needy.
21 She is not afraid of snow for her household,
for all her household are clothed in scarlet.[b]
22 She makes bed coverings for herself;
her clothing is fine linen and purple.
23 Her husband is known in the gates
when he sits among the elders of the land.
24 She makes linen garments and sells them;
she delivers sashes to the merchant.
25 Strength and dignity are her clothing,
and she laughs at the time to come.
26 She opens her mouth with wisdom,
and the teaching of kindness is on her tongue.
27 She looks well to the ways of her household
and does not eat the bread of idleness.
28 Her children rise up and call her blessed;
her husband also, and he praises her:
29 “Many women have done excellently,
but you surpass them all.”
30 Charm is deceitful, and beauty is vain,
but a woman who fears the Lord is to be praised.
31 Give her of the fruit of her hands,
and let her works praise her in the gates

She is beautiful inside and out.

She is loving and caring.

She is kind and compassionate.

She is fiercely protective of those she loves and cares about.

She is full of passion for what she believes in and always stands up for her beliefs.

She is strong and does not easily back down.

She is determined and does not quit, that is not an option and she will find her way around any obstacle in her path.

She is an artist with a flair for repurposing items that people see no value in. She brings old things back to life.

She is a great listener and works toward a solution, rather than complain about a problem.

She is an amazing mom of three college graduates who are changing the world around them.

She is a wife, a mom,  an aunt, a sister, and a daughter.

She is an emergency 911 dispatcher who works more hours than should be humanly possible. The first voice you might hear, full of calm and reserve as she manages 500 things at once.

She is a former school bus driver that loved her riders as if they were her own children.

She is an animal lover and considers them family, not just pets.

She never has enough time to take care of herself, she is always caring for others and burning the candle at both ends.

She is wise beyond her years and has seen many things most people will never have to see.

She is faithful and will celebrate 29 years of marriage this month to her loving husband.

She was a cheerleading mom and advisor when her daughter was school age.

She loves her community and has a great tribe that she holds dear and close to her heart.

But one of the best things she is…..she is my sister. And I love her with all my heart and soul. Today is her birthday. I don’t see her as often as I would like, but I hope she knows how very proud I am of her, her accomplishments, which are too many to mention. I know she is always a phone call away. Our family is very blessed indeed!

Cathy

Catherine, I love you sis and I pray that today your birthday will be all you hope for and more! You deserve it! Much love~Carlene

 

May you know how much Jesus Loves You-right in this moment-right where you are! Jesus can turn any mess into a message of hope. #HopeAlwaysHaveFaith

Blessings to all!

 

 

 

 

Drowning

Psalm 143:6-8 New International Version (NIV)
6 I spread out my hands to you;
I thirst for you like a parched land.[a]

7 Answer me quickly, Lord;
my spirit fails.
Do not hide your face from me
or I will be like those who go down to the pit.
8 Let the morning bring me word of your unfailing love,
for I have put my trust in you.
Show me the way I should go,
for to You, I entrust my life.

 

HelpMe

 

I am a strong person. I am told that all the time by my friends and family; even people I just met and have yet to form good relationships with. But what no one seems to realize is that I am strong, only because I allow Jesus to be my strength. My strength fails in comparison to that of Jesus.

I believe that all of us have an inner strength we are gifted through the Holy Spirit and it takes patience and requires a trust to tap into that inner strength.  It doesn’t come unless it is put to the test.  I know God will give me everything I need to succeed in every task I am given.  I know He will not set me up to fail. He is good. All the time.

Just as we can become physically exhausted and need rest and rejuvenation, I know my spirit can become emotionally and mentally exhausted and I also need to take time to rest and rejuvenate.  That type of rest and rejuvenation is different for everyone.  And I also know, for me personally, if I do not take the necessary time to rest and rejuvenate my spirit, I feel as if I am drowning and my Lifeguard walks on water, how insane is that? For me to feel as if I am drowning.

I am a “people” person. I am a nurturer, and if I must admit it, I want to be a “fixer” or “people pleaser”. Not in the sense that I have any skill or talent that I can fix anything because Jesus is the only one that changes the hearts and minds of people. I can only make suggestions based on my personal experience and observation.  I am much like my father, who loved being around other people and never met a stranger. I guess that qualifies me as an extrovert, personality wise. Striking up conversations with people, getting to know them, gaining a personal connection makes me come alive.

Knowing all of that, this morning hit me so hard, because as our sweet grandson wanted me to listen to him, about just one more vacuum and how cool they are, I became very frustrated and a little bit annoyed. I could care less, if I hear just one more thing about vacuums, truth be told.  I know I will hear about them though.  He can’t get enough, ever. And I know he can’t control those thoughts. Our brains are wired so differently. I only wanted to go back to bed and shut the world out for the day. Rest, listen to music and some podcasts, fuel up.

Taking time for myself, shouldn’t make me feel guilty or ashamed that I want some quiet. Some peace. And I shouldn’t have to feel bad if I don’t want to hear about it anymore. The guilt in my heart is from the world. Not God. It’s from the fixer in me, that says, “suck it up” you can make it through today, and tomorrow and the next day.

I wonder why we feel so guilty when we want to spend time with ourselves, no agenda or plan, just be. In the Word, God tells us to “be still and know that I am God”. Being still seems so unnatural now.  I used to love being still and days like today I miss those moments. Explaining that to anyone, usually brings a response of “what’s wrong?” And I want to know why does anything have to be wrong? Some days, everyone needs time to themselves, without having to leave the comfort and haven of their own home.

I feel guilty when I think of just me and my needs. How crazy is that? I know it is a very necessary need. I shouldn’t feel guilty, but I feel like I am letting people down if I am not doing everything considered necessary to keep life on an even keel, but I realized today that if I do not take the time for me, the ship will sink and we will all drown.

No one can be an effective teacher or role model in life if they don’t take time to just be.

So, as hard as it is for me, the person that likes to fix things, today I have to take time for me. Drowning, quitting, giving up these are not options. Resting should be the easiest task I have to do, but it’s so foreign to me, I am not sure what resting even looks like.  I guess I will have to keep working on the resting part.

Matthew 11:28 New International Version (NIV)
28 “Come to me, all you who are weary and burdened, and I will give you rest.

Lord Jesus, here I am. You know how weary I am right now. I claim rest in your name and praise you for being the Savior I need. Everyday. Thank you for taking my burdens and bearing them on the cross. Thank you for giving me life. Please help me find the balance I need to not feel so worn. In Jesus name, Amen.

May you know how much Jesus Loves You! Right where you are at this moment in time.

He is always here for you, always! #HopeAlwaysHaveFaith

Blessings~Carlene

 

He is Lost

Psalm 56:8 New Living Translation (NLT)
8 You keep track of all my sorrows.
You have collected all my tears in your bottle.
You have recorded each one in your book.

 

I’ve shed many tears in the past several months. We all have. And I cry out to Jesus a hundred times a day seeking guidance, wisdom, clarity, and discernment. I cry because the once happy child we love that lives in our home and most definitely in our hearts is missing in action. And the child that can’t tell us what’s wrong, has become angrier by the minute. We don’t know why, but he has. It’s so difficult to watch the decline in his moods and behaviors.

Tyson and Me
A moment of rest for T and Me

The words, “No!”, “That’s not okay!”, “That’s not acceptable.”, “We don’t do that.” fall on deaf ears. The constant repetition of trying to explain to this beautiful boy that it is not okay to hit, kick, scratch, punch, bite and be mean to others  or throw toys, plates, cups or any item he chooses to use as a weapon to hurt someone or break windows, electronic items; it’s not okay and he can’t do that. Trying to explain to him, once you have his attention (looking into each other’s eyes and asking him to stop, let’s calm down, dry his tears) that not only do we not want to be hurt, but we don’t want him to get hurt either is an everyday task.

He has always been hyper, ever since he started walking at ten months. He went from scooting to pulling himself up to standing and walking. He totally skipped out on crawling.  Even now, if he is playing on the floor, he rolls or scoots or somersaults his way through the room, unless he’s walking on his tiptoes or running at breakneck speed.  He has one speed and it’s all or nothing. And the nothing only happens when he is given medications to help him sleep.  Even when he is beyond exhaustion, sleep does not come without prescribed medications. His brain never shuts down.

Some friends, suggest putting him in timeout. That would be amazing if we could get him to sit still long enough to accomplish that. Today, I put myself in timeout. Sitting on the opposite side of the safety gate on the steps. He was still being supervised, but I needed a good cry. Trying to remain strong all the time, and not knowing when an outburst will occur is heartwrenching. The child that used to love to play with blocks, legos, cars flying down his racetrack, counting and having fun, I don’t know where he is. The child that loved to paint with watercolors, scribble all over the papers and practice using his scissors to cut, he’s lost.  I see him stand in front of me, but he’s not the same. The little boy that I could scoop up in my arms, squeeze him tight and we could count or recite the alphabet and talk to one another, I don’t see him much anymore. I see a child full of anger, aggression and for lack of another way to describe it totally overloaded in his mind all the time. Shutting down the television, turning off video devices, taking toys away and never giving them back, doesn’t seem to faze him. The music that used to lull him to sleep, while being rocked, he cries and doesn’t want the music very often.

The night terrors are not as bad as they used to be, now we deal with daytime terrors. Fully awake, but he can’t tell us what’s wrong. Yes, he has amassed many words, but unless he wants something, answering questions is still yes and no for the most part. He can answer to what his name is, the street he lives on, sometime’s the city and who lives with him.

He has been up, five times since being put to sleep tonight. Whimpering.  “Please hold me.” So I hold him, we sway back and forth. As he falls back asleep, and I think it’s okay to lie him down. Sleep eludes. The minute I laid him down, whimpers, “please hold me maw.” I’ve decided sleep will come for me once he boards the bus to preschool in the morning.

And as  I ruminate about all the changes in the past year for him, I often wonder what happened? Have all the seizures he has had, accompanied by medications known to cause aggressive behaviors and irritability caused this drastic change in my little buddy? Is it the medication he is prescribed for the aggressiveness with the autism? Is it a combination of the medications? But which is worse, having multiple seizures often or living with the behaviors? I have no answers and the specialists don’t seem to know either.

I’m considering everything and planning on going back to Essential Oil use to help relax and calm him down. It worked when he was younger, maybe that is a missing link. I know there are supplements that have been used to help and maybe it’s just possible that is what he is missing.  The developmental pediatrician and his neurologist ask if I can videotape his behavior, but when you are the target of the behavior, grabbing your smartphone and turning on video doesn’t occur to me. Keeping him safe and others safe is my first priority.

It has been recommended to talk to an ABA (Applied Behavior Analysis) therapist and see if that will help. I didn’t want to face that fact. But now, I must. We have to for him. Not knowing if his insurance will help with the cost or if we have to cut more corners than we have to pay for it, one more stress to be strong for. I do know, as tears stream down my face, I will do as much as I possibly can to help him. Loving him is the easy part. Knowing what to do next, and figuring everything out by trial and error is the worst. For him, as well as us.

I sit and wonder daily how difficult it must be that the only way that he can cope is to exhibit the behaviors he has. I wonder if the noise, lack of noise, the lights on and off, what is it that makes turn his world and our’s upside down? Can we reach him? I have faith and belief that God would not have let him come this far, only to lose it all and have to start over again.

Two years ago, there were two words. Very little interaction with others and the playtime was limited to large blocks his tiny hands could hold. His vocabulary has increased. He does engage with others, he can hold your gaze for more than a mere second, but the joy of playing, it’s lost. If he can’t throw a toy, he has no desire to play with it.

A  year ago, he was flourishing in his preschool class. Following a visual schedule, completing tasks, using listening skills and then midway through the year, it all changed. Once he started having his seizures and had to go on medications, he changed or they changed him.

And now, I look for glimpses of that little boy that laughed and giggled, would jump and spin for the pure joy of doing it. I miss him terribly.

My good friend asked if I know what causes all this. I don’t. I know that he lives every day with many Neurological disorders and maybe right now he is doing the best he can. I remind myself that Autism Spectrum Disorder has many challenges. I’m learning that Attention Deficit Hyperactivity Disorder isn’t just about focus, there are many symptoms I never knew were linked to ADHD. His Sensory Processing Disorder seems heightened more than ever and although his tonic-clonic (formerly grand mal) seizures are held at bay by the AED’s (Anti-Epileptic Drugs) he still has absence seizures, and as much as I would love to say he is just daydreaming as suggested by his Neurologist, I am not sure T even knows what daydreaming is or what it means. He’s 4 with a language disorder.

The one and the only area that his language is truly understood is when he talks to you about vacuum cleaners. That is what he fixates on. He has had toy ones, they don’t last very long. He’s rough on them. Two “real” vacuums in our home have succumbed to his mighty strength. He sweeps for a short period and then while pretending, he picks this heavy appliance up as if it was a feather and tosses it a few feet from him. And when he starts to do that, it is put away. He clings to it and has to be pried away from it kicking and screaming, “my sweep”.  Of all the things that he could fixate on, that was the farthest thing from my mind.

I’ve been silent about this. Not wanting to face that we have to find a way to help him. We have to teach him that the way he reacts and acts is not the best way for him. And we have to learn how to do that in his world. Because in our world, we are lost, too.

Lord Jesus, you know the struggles we are facing. Please help T and help us help him. We know how blessed we are to have him with us. We thank you for giving us the gift of this young child and trusting us to guide him. Guide us. Lead us. We want to see him bloom in only ways you know he can. Forgive us when we become frustrated and upset. Remind us that he too is frustrated. Thank you, God. In Your Name Jesus. Amen.

James 1:2-4 New Living Translation (NLT)

2 Dear brothers and sisters, when troubles of any kind come your way, consider it an opportunity for great joy. 3 For you know that when your faith is tested, your endurance has a chance to grow. 4 So let it grow, for when your endurance is fully developed, you will be perfect and complete, needing nothing.

May you know how much Jesus Loves You~right at this moment~as you are!

#HopeAlwaysHaveFaith

Until next time~blessings, Carlene