Category Archives: Gratitude

Before & After

bEFORE AND aFTER

 

I’ve read that when people grieve they can break it down into two times. Before and After. Before the loss and after the loss. I know this is true. I also know that this just doesn’t apply to the loss of a loved one. It’s also the loss of a function.

Before sepsis, my memory was rock solid. Retaining anything was easy. Sometime’s I had to write it down, but once I had spoken it, read it or wrote it, it was easy to remember. After sepsis, I am finding that the only short term memory I have is in the moment. The moment it is being read, written down or spoken. THIS frustrates me so much, I don’t even know the proper way to express it as to how much it does.  I need notes to remind me that I know something and even then the notes aren’t always helpful.  Memory has never been something I have had trouble with and now anything that happened before sepsis is easily pulled from my memory and easily shared. After the illness and hospital stay, everything spoken or read becomes lost. And it’s scary.

As I sit and read The Word, I am glad that I knew God, Jesus and His Word before sepsis, otherwise, I might read something but have no way of retaining it or understanding it.

In His Word, it tells us to be thankful in all circumstances, with prayer and petition.

Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.-1 Thessalonians 5:18 NLT

I wouldn’t wish this life-changing sepsis (aka septic shock/septicemia) on anyone. It is dangerously devastating to your body, mind and can be fatal if not caught in time. However, going through this almost fatal health scare( had I not went to the hospital at the time I did, I would have died)  has taught me to take care of my needs and myself: physically, mentally and most of all spiritually. To be thankful and content in and at all times. To be grateful and have a heart of gratitude for what I do have, for the millions of blessings God bestows upon me daily and for the many times he has kept me from harm.

Many things have changed in me and for me since before and after sepsis, but I am glad to still be here, very much alive, working on progressing to wellness again and thankful I can still share about Jesus and the love he has for all of us.

There are many things we go through and the one thing I have learned through all the painful pruning the Lord does with me is everything is for a purpose and a plan. His purpose and His plans. He continues to work in and through me, and in and through my pastors, friends and family members to teach and rebuke me when needed, to encourage me and strengthen me when I am weak and to continually pour out His peace and His joy and His love into me and my life.

Refining and purifying is a painful process. But in order for you and me to bear good fruit to share with others, we have to go through these processes and weed out what is not from Him. As you grow in your faith, there will be many things you will go through and each one will shape you into the person God has created you to be. I am working on not being resistant to the process. Some moments are more painful than others, but all are necessary.

May you know how much Jesus loves you~right now and always. Jesus Christ is my everything and that is one thing that has not changed. He was my everything before sepsis and He is my everything after sepsis. Having sepsis and recovering from it, has made me realize how much I rely on Jesus and how difficult it would be for me to make it through the rough days without it. I am so thankful I have my Savior, Jesus Christ with me daily.

Blessings~Carlene

Reflections in My Mind

Psalm 119:169-170 New Living Translation (NLT)
169 O Lord, listen to my cry;
give me the discerning mind you promised.
170 Listen to my prayer;
rescue me as you promised.

I miss working daily.  I don’t miss rising super early while it’s still dark outside, with little traffic to speak of, but I do miss the daily conversations with co-workers and vendors/customers.  I don’t miss working on holidays or funky schedules because of the type of job it was, but being an extrovert and conversationalist, it’s difficult day in and day out to not talk to people, other than your family members you live with. Don’t get me wrong, I love my family.

I don’t miss being in such severe pain that I would cry every day as I limped to my vehicle for the 10-minute ride home.  I often wished my drive home was longer because this was the only time I had to myself throughout my day. Being a people person; never meet a stranger type gal, I still need quiet time for me.  And since retiring with a disability, the only time I get for myself is when I sleep. (I did have one day over the weekend where my husband took the two children for the day to visit other family members and it was very appreciated!)

There is always someone with me. I am very thankful to have my husband with me, as we continue to grow older and blessed that I get to spend all day with two of our grandchildren and our daughter, but there are moments when you just need your own space. And if you are a parent, then you know even going to the bathroom usually means there will be someone following you in to talk with you or “hang” out.  I never fully understood until I had children of my own, what parents meant when they said they couldn’t even hide out in the bathroom. Our children are grown, but inquisitive toddlers don’t understand their presence is not needed every time.

I used to read three to four books at a time, and now I am lucky to get through one chapter of a book in an entire day!  I miss reading like that.  Just immersing myself in a story, envisioning the characters and the scenes, gripping the book in my hands with a feeling of ‘I know I should go to bed but I can’t put it down just yet’ or ‘I’ve got to see how this ends’ mentality. Now I just pray to make it through one chapter and hope that by the time I can pick the book up again, I won’t forget what I read and have to start it over.  It’s so frustrating how my brain has changed since I retired due to my fibromyalgia and other health conditions.

I look back at where I was in 2016, leaving a job of 16 years, with no plans except trusting God for everything, to where I am now and a whole lot has happened in the short amount of time, but Jesus has carried me through every single situation. He has been my strength, my provider in more ways than one, and continues to be available for me every single second of every day.

art artistic black and white blank

Photo by Lynnelle Richardson on Pexels.com

*I was approved for my Social Security Disability within a few months of applying, for the first time on my own. No denial or a need to get an attorney to help me fight, which is all I heard from people when I said I was going to apply.

*Available to help our daughter with her son, after he was diagnosed with Autism Spectrum Disorder as he needed substantial support and constant supervision. Read everything I could get my hands on to learn about ASD and did my own type of “homeschool” to help him(this would not have been possible if I had been working full time).

*I wrote and self-published a book about the Jesus and His mercy and grace.

*Met others that live with the same type of health conditions I have so we can offer one another support and encouragement.

*My faith increased as I saw God’s hand in my life and the lives of those I love.

*Drew closer to the Lord through trials and tribulations of going from having an income to no income to a fixed income and thankful for pantries and organizations that help when you need it.

I’ve been blessed to witness so much in our grandson Tyson since his diagnosis in 2016. He was nonverbal. Now he is speaking. He made no eye contact or engaged with others, now he is doing better. He lived in his own world, and now he lets us in.  Every victory, big or small, is celebrated. And when I look back at to where he was at 26 months to now, I am so thankful God has placed the right therapists, doctors and medical support staff in our path.

I’ve sat with my husband at doctor appointments for myself and him, as we navigate the many health issues we have and I am thankful I was able to do that for him and not wonder what is going on, as his memory isn’t what it used to be.

I have seen our older grandchildren blossom into thinkers and doers. Always being kind and helpful to others. Moments that I would have missed had I not retired. But early retirement comes with a price. When it’s not planned and you have no life savings or retirement funds to look forward to, there is always the concern that what will happen if there is an emergency or a crisis.  Even in those moments, the Lord has seen us through.

I miss having a steady income stream. Or should I say I miss my hourly rate of pay? If I were to figure out my monthly disability income as an hourly wage, I would be making a lot less than the federal minimum wage.  And that 2% cost of living increase the federal government was so kind as to give people that receive social security doesn’t even begin to cover anything. But an increase is better than a decrease I guess. Receiving benefits once a month versus weekly or bi-weekly truly teaches the value of money and what you spend your money on.  Going to the movies, out to eat, bowling, museums, etc. that is a rarity. Trying to explain to children why they can’t have a $3 happy meal is difficult some days, but it is not the end of the world. Life goes on.

The one thing I despise is having a chronic condition and going to urgent care or emergency room because the pain you have is something out of the normal for you and if they know you have an autoimmune disorder, many tests/scans that might be done for a person without a chronic invisible illness, presenting with the same complaints and symptoms, isn’t even considered or done because of the chronic condition you have.  Why does the public or medical personnel think that every person with chronic pain related condition is seeking out drugs or medications for pain relief??? Sometime’s all you want is an answer to why you are feeling so poorly and wanting help.  You know it’s not the same kind of pain you live with day in and day out, but once they hear the F word (fibromyalgia) it’s chalked up to that and nothing is done. I know why, so you don’t need to tell me, it really was a rhetorical question.  Because there are many people that have cried wolf one too many times and makes it bad for the rest of us that truly do need help.  I don’t take any kind of pain medication that I can’t purchase over the counter from the pharmacy.  I can’t due to another health condition.

Prayer and focusing on Jesus and His Word carries me every day. I could complain all day long, but it won’t help me feel better.  It will actually suck the life out of me. Focusing on how blessed I am and how thankful and grateful I am makes me feel better, even on pain filled fatigued days.

Yesterday was a pain filled day. It didn’t start out that way, but as the day progressed, the severe muscle spasms that come when they feel like it and leave the same way, almost debilitated me yesterday.  As I was trying to reach something just out of my reach, they started in my abdomen, worked their way under my ribs on both sides and into my back and shoulders.  When these hit, there isn’t one thing that makes them better.  Lots of little things I try: stand up, bend over and hang in that position for a while, press firmly on my sides, try massage, ice packs, heating pads, a lot of breathing in and out slowly much like a woman having contractions in labor. I wish I could just walk them out similar to leg and foot cramps, but I am at the mercy of my body. And as they relaxed to a dull ache, and not a stabbing pain, I was finally able to lay down and rest. I hate when I have days like that. I’ve been dealing with these stupid spasms for over ten years. No one knows why they happen, or how to prevent them. I’m not low on magnesium or potassium, it’s not my heart, it’s just one minor inconvenience of having fibromyalgia.

I do take a supplement that helps with overall pain, but it’s not a cure-all for all my pain.  How I wish it was. But I am very thankful to have it as a tool that I use daily.

I am in the process of listening to the Lord and seeking guidance on writing another book. Not sure when it will happen, if it will happen but I feel a tugging on my heart to do it. I know God gives us the desires of our hearts and the gumption to achieve them.  I am still waiting to discern the topic for the book. My thoughts are jumbled and my spirit believes it has to do with His might and our worth in Him, but forming the words into sentences that make sense and will help others know Him more intimately, are still randomly bouncing around in my mind.

Our homelife recently changed, as our granddaughter Emmalin made her presence known. We are adjusting to having a baby in the house again and loving the fact we can see her daily, but how easy we forget the demands of a new babe and they have no sleep routine yet. They are more powerful than they realize. It’s all good.

As for reading, I am currently reading a book called The Autism Answer by Dr. Frank Lawlis. I will let you know what I think if I finish it.The Autism Answer by Dr Frank Lawlis

It’s only 122 pages long and years ago, I could have read that in a few hours. I have had it since last Friday and only have made it to page 11! So, maybe if the stars align, and Tyson is having a good day, and health problems don’t arise, maybe I will finish it before summer time.

I know this post has been all over the place, but that’s where my mind is today. My husband is having some health issues without any kind of answers and I will not say I am worried because worry gets you nowhere.  I am concerned that no answers of any kind seem to be attainable right now, but I will continue to press into the Lord and seek his guidance and wisdom.

May you know how much Jesus Loves You~right now and always. Jesus can turn any mess into a message and any test into a testimony. #HopeAlwaysHaveFaith

Blessings ~ Carlene

 

 

 

 

 

 

 

 

 

Fresh Start

HAPPY NEW YEAR 2019

As 2018 draws to a close, thank you from the bottom of my heart for sticking with me and being part of my life.

May 2019 bring you peace and joy.  At the stroke of midnight, you will have 365 days to write your story.  Every choice we make determines the destination we land at.

Love others, forgive often, admit mistakes, don’t be too hard on yourself. Show yourself grace in difficult moments.

Jesus Loves You~always.  Jesus can turn any mess into a message and any test into a testimony! #HopeAlwaysHaveFaith

Blessings~Carlene

Faith Can Move Mountains

I have told you all this so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world.”

John 16:33 NLT

person on a bridge near a lake

Photo by Simon Migaj on Pexels.com

 

I read the above verse, and I am reminded that I have the  Holy Spirit with me. He dwells within me and I know that without Him, I wouldn’t have made it this far.  Each approaching new year, there are always goals/visions/hopes/dreams we each have. Some people make New Year’s Resolutions, others choose to make lifestyle changes, dietary changes, relationship changes, and some choose to just look at it as another day and keep putting one foot in front of the other.

I look back over the past 12 months and I have seen a lot of hard behaviors to cope with, on a daily basis. Keeping the peace of Jesus in my heart and alive in my life has been nothing short of a miracle; many days I wept inwardly, wondering where that Peace was. How had I went from being able to handle almost anything that required coping skills, to being in constant prayer and conversation with my Maker because I felt I was losing my grasp on His Peace. What had gone so awry that I felt lost and alone, in a room full of people? And then I realized that I was relying too much on my own strength and not relying on His.

In our home, we have many medical diagnoses. Four of us live here, soon to be five give or take 6-7 weeks if our soon to be (second) granddaughter waits until her due date to make her arrival.  I personally deal with fibromyalgia, chronic obstructive pulmonary disease, sleep apnea, degenerative disc disease in my lumbar spine with facetous arthritis, osteoarthritis in my hip/knee joints, carpal tunnel syndrome, thyroid disorder, high blood pressure. Plus I live with people who suffer from depression/anxiety/heart/stroke/language disorders, autism, adhd, sensory processing disorder, epilepsy, and mental illness.

Keeping track of medical appointments, therapy schedules, labs that need to be completed in a timely manner and pregnancy-related appointments, just about makes my head spin; dealing with IEP’s and developmental delays….the list goes on.  If only one of us is having a rough day, we can manage pretty good; if all of us are having an off day, it’s a true struggle.

It’s remembering that I was not created to do things in my own strength.  I have heard, as I am sure you have too, that God will not give you any more than you can handle and there have been days I have questioned that statement. But the Truth is, God doesn’t expect us to handle anything on our own, but to turn to Him and rely on Him.

And while in the midst of my cries to the Father, seeking guidance on how to proceed with this life He allows me to live, waiting on His answer is always the hardest part for me. In the past two years, since retiring early due to disability, I thought for sure I knew the path He would take me, but it has been such an amazing and frustrating journey, that He only gives me glimpses of what He has called me to do. Just enough to take that next step of faith. I can only imagine that if I were to see the entire picture of the plan He has for my life, it would be so all-consuming, overwhelming that I might crumble at the thought of it.

In His infinite wisdom, He knows what is best for each of us. He provides for every need. It may not be the provision we envisioned, or even hoped for, but He always gives us just the right words, at just the right moment. And yes, He answers prayers. Some days it’s “Yes, my child.” “No, not now.” or “Wait, it’s not time for you to know yet.” In His perfect timing. I have learned not to pray for patience because patience always requires testing of some kind; so I pray for peace to get through those times.

Every single solitary thing we go through in life refines us into the people God created us to be. Some are very exciting and mind-blowing, others are so sad and sorrowful, we want to skip that process, but every single second of our lives, He is working in us and for us. And the grass always seems greener on the other side of the fence.

I love my family more than my own life. I don’t like when we are nipping at one another, or being grumpier than normal, because it tears me up inside. I guess though, that since we are human, that is bound to happen from time to time.

I’ve been in my own world for weeks now. A close dear friend is fighting the battle of her life with a cancer diagnosis and no definitive results yet on exactly the type of or the best type of treatment for her. And when I think of all she has been through, what her family is going through daily, I give thanks because my problems don’t seem so out of control as they feel. The strength and courage that she has shown, in living out her faith and trusting in the Lord brings joy to my heart and encourages me to look for every single blessing I have or blessings I have overlooked.

1 Thessalonians 5:16-18 New Living Translation (NLT)
16 Always be joyful. 17 Never stop praying. 18 Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.

Whatever mountain you are facing in your lives today, please know there is a Savior that would love to hear from you. He is always available. He is always listening.

Jesus can turn any mess into a message of hope and any test into a testimony.

May you know how much Jesus Loves You~right here-right now!

#HopeAlwaysHaveFaith

Blessings until next time~Carlene

 

 

 

 

 

 

My Catherine the Great

Proverbs 31:11-31 English Standard Version (ESV)
11 The heart of her husband trusts in her,
and he will have no lack of gain.
12 She does him good, and not harm,
all the days of her life.
13 She seeks wool and flax,
and works with willing hands.
14 She is like the ships of the merchant;
she brings her food from afar.
15 She rises while it is yet night
and provides food for her household
and portions for her maidens.
16 She considers a field and buys it;
with the fruit of her hands she plants a vineyard.
17 She dresses herself[a] with strength
and makes her arms strong.
18 She perceives that her merchandise is profitable.
Her lamp does not go out at night.
19 She puts her hands to the distaff,
and her hands hold the spindle.
20 She opens her hand to the poor
and reaches out her hands to the needy.
21 She is not afraid of snow for her household,
for all her household are clothed in scarlet.[b]
22 She makes bed coverings for herself;
her clothing is fine linen and purple.
23 Her husband is known in the gates
when he sits among the elders of the land.
24 She makes linen garments and sells them;
she delivers sashes to the merchant.
25 Strength and dignity are her clothing,
and she laughs at the time to come.
26 She opens her mouth with wisdom,
and the teaching of kindness is on her tongue.
27 She looks well to the ways of her household
and does not eat the bread of idleness.
28 Her children rise up and call her blessed;
her husband also, and he praises her:
29 “Many women have done excellently,
but you surpass them all.”
30 Charm is deceitful, and beauty is vain,
but a woman who fears the Lord is to be praised.
31 Give her of the fruit of her hands,
and let her works praise her in the gates

She is beautiful inside and out.

She is loving and caring.

She is kind and compassionate.

She is fiercely protective of those she loves and cares about.

She is full of passion for what she believes in and always stands up for her beliefs.

She is strong and does not easily back down.

She is determined and does not quit, that is not an option and she will find her way around any obstacle in her path.

She is an artist with a flair for repurposing items that people see no value in. She brings old things back to life.

She is a great listener and works toward a solution, rather than complain about a problem.

She is an amazing mom of three college graduates who are changing the world around them.

She is a wife, a mom,  an aunt, a sister, and a daughter.

She is an emergency 911 dispatcher who works more hours than should be humanly possible. The first voice you might hear, full of calm and reserve as she manages 500 things at once.

She is a former school bus driver that loved her riders as if they were her own children.

She is an animal lover and considers them family, not just pets.

She never has enough time to take care of herself, she is always caring for others and burning the candle at both ends.

She is wise beyond her years and has seen many things most people will never have to see.

She is faithful and will celebrate 29 years of marriage this month to her loving husband.

She was a cheerleading mom and advisor when her daughter was school age.

She loves her community and has a great tribe that she holds dear and close to her heart.

But one of the best things she is…..she is my sister. And I love her with all my heart and soul. Today is her birthday. I don’t see her as often as I would like, but I hope she knows how very proud I am of her, her accomplishments, which are too many to mention. I know she is always a phone call away. Our family is very blessed indeed!

Cathy

Catherine, I love you sis and I pray that today your birthday will be all you hope for and more! You deserve it! Much love~Carlene

 

May you know how much Jesus Loves You-right in this moment-right where you are! Jesus can turn any mess into a message of hope. #HopeAlwaysHaveFaith

Blessings to all!

 

 

 

 

I Often Wonder……

Isaiah 44:3 New Living Translation (NLT) 3 For I will pour out water to quench your thirst and to irrigate your parched fields. And I will pour out my Spirit on your descendants, and my blessing on your children.

I often wonder if the answers will ever come. I often wonder what goes on in your mind that keeps certain things just out of your grasp and I often wonder what you see that makes you gaze off in the distance as if something has caught your attention that only you can see.

I wonder why music makes you happy, but instruments playing cause you to cover your ears and bury your head.

I wonder what happens when everything becomes too much and what is the one trigger that sends you into a meltdown. Is it something I can control or remove from your environment or is there any rhyme or reason as to why it happens at all?

I wonder why spinning around and around brings you the most amazing release and joy, but makes me swoon almost to the point of collapse.

I wonder what it was like at the beginning of your life when you couldn’t communicate, did you think we didn’t care? I hope not.

I wonder what it feels like in your head; do you hear everything in the same tone? Do you hear all the noises at once, because I know that processing information for people diagnosed with autism spectrum disorder, many have a difficult time processing information or input you hear and you may need more time than most people to answer questions or respond appropriately.

I wonder what is happening within you when you run and jump and slam toys and objects into the floor; when you throw things without thought as to what can happen. Someone may be hurt or something may become broken, but all you seem to know is you have to throw it, you need to do it to make you feel better.

I wonder what happens when everything becomes too much, and you cry and whimper, because they are no words to describe or explain the overwhelming feelings you have and sometimes no amount of hugs or deep pressure helps you feel better, only crying yourself to sleep helps.

I wonder what happens to you and how your brain is affected when you have a seizure. Will those seizures change who you are? Will they affect your thinking processes? No one seems to have an answer.

I wonder why vacuums and ceiling fans are your obsession. I can’t begin to understand, but I know they are. I have heard this is normal for people with autism, just like when you line things up. You can be so rigid with that, but you love the chaos of toys strewn everywhere and it drives me crazy.

I wonder if you will ever understand the danger of running into the street or running toward water without one of us with you.

I wonder if you ever get tired of me asking you to repeat the same word you just said and if you understand I am only trying to help you communicate more clearly.

I wonder if you know who Jesus is. I wonder if you like going to church because you get to spend time with other children, your age and learn about Jesus, or if you just like getting out of the house and have some freedom.

I wonder why you bang your head, and even though it hurts, you do it again and again.

I wonder if you will ever to be able to read on your own. Or if you will always rely on pictures to understand.

I wonder if you will ever be able to live on your own, or if you will always need the support of family.

I wonder why you have night terrors. I wonder what causes them and why you must experience them because you already deal with so much and you are only four years old.

I wonder if you will ever be able to be outside without wearing a safety harness as we go shopping or to appointments. I wonder if you know we only do that so you can have a little bit of freedom, but we can keep you safe.

I wonder if you will ever take your Epilepsy and ADHD medications independently or if we will always have to hide them inside your liquids and foods. I wonder if you will always have to take medications to keep your brain from misfiring and your hyperactivity under some sort of control.

And while I wonder all of these things, there are many ways that you amaze me every single day.Tyson Vacuum image

I am amazed at how much your ability to communicate has improved over the last couple of years and how you work over and over to learn new sounds and words.

I am amazed that when you started preschool last year, you were considered nonverbal and only had 24 words under your belt, but by the end of the school year, you were speaking in 5 Word utterances.

I am amazed that you love with such a huge heart and tell me every day, without prompting, that you “wuv” me.

I am amazed that at times, you can sit still and remain calm, if even for five minutes. That’s a huge success.

I am amazed that if we show you pictures marked on a calendar you understand how many days you have to wait for something to happen.

I am amazed that you know how to use the potty when you want. It isn’t every day, but someday it will be.

I am amazed that you go to Speech Therapy every week and you improve on what you learned the week before. And this is part of our routine. Every week for two years.

I am amazed that you try to write the first two letters of your name but recognize all of them.

I am amazed that you know how to count from 1-10 on your own and are learning how to go onto 20.

I am amazed that you can recite the alphabet and can also recognize letters, even if they are not in any particular order.

I am amazed that you know what it means to put things in a sequence and you do it without error.

I am amazed that you love foods that are good for you. Tomatoes, cucumbers, strawberries, watermelon, bananas, apples, vegetables, yogurt and cottage cheese.

I am amazed that you can name almost every vacuum made by simply knowing how they look and are designed and how impressive it is when we are out in a store and you can point them out to me.

I am amazed that you like the taste of my coffee, once it has cooled off.

I am amazed that you never give up when you want something. You are almost relentless in asking for it, even when the answer is no.

I am amazed that you are willing to share your toys, even if you don’t want to.

I am amazed at how much you love animals and are not afraid of them. I shouldn’t be amazed by this, because your mom loves animals too.

I am amazed that you are always willing to try and you don’t give up easily.

I am amazed that when someone doesn’t want to do something, you gently remind them to try.

I am amazed that you can watch ceiling fans and fidget spinners spin for hours and you love this. Who knew something so simple could bring such joy?

I am truly blessed that you are in my life, Tyson. You have taught me many things. Some I have learned by trial and error; in many ways, I have a ways to go. But you never give up on me. You bring such joy to my life. I cannot imagine my life without you in it.

Every condition and disorder you have been diagnosed with, one would be more than enough for anyone to handle, but you deal with five. So no matter how many times, I want to cry and feel sorry for what you have been dealt, I look at how resilient you are and I know that because you live with these, I do too. I’ve learned to look at life just a little bit differently and realize that although these disabilities may afford you some extra help, that they do not mean you can’t. You just do things differently.

I love you; I love you more; I love you the most; I love you forever! This is what we say to each other before bedtime. He repeats much of what he hears but will say I love you too, on his own.

*I wrote this for our grandson, Tyson. He is four years old. Someday he may be able to read it or have it read to him, but I want him to know that although we never expected to have a Special Needs grandson living with us and being a part of our everyday life, challenging us to think outside the box of “normal parenting” if there is such a thing, that without a doubt, he has opened my eyes to the world around me. He has taught me so much in these last four years, more than I could have ever learned in a book.

I am thankful to our Heavenly Father that he felt he could entrust Tyson to our care, along with his mom. And I pray daily that we utilize every opportunity to help him learn and thrive in the world we live in.

May you know that Jesus loves you~right where you are right now and always.

Blessings, Carlene

Family Time

This past week, we loaded up our Yukon and drove 989 miles in searing heat with no air, except for the wind whipping around in the truck with our windows down. As humid and hot as it was, and all the perspiring going on, we should have melted the pounds away.

When you travel with a child that has special needs and an adult with respiratory problems, you feel like you’re packing the entire house for a weekly excursion. Loading the truck with suitcases, a medicine bag for several people, mobility devices and a bag of toys/books to keep everyone satisfied….checking lists off twice, it’is not as easy as it sounds. It takes almost an hour to load everything and then you pray you didn’t forget anything.

Our family, except for our daughter and fiancee, secured in our seatbelts and car seats made the normal 15-18 hour trip in 21 hours. Longest 21 hours of my life so far.

I love the state of Florida and someday when I’m old and gray, I hope we can call Florida home again. Ok, I’m old and I do have some gray strands peeking through, but Tyson is doing so well in Ohio and is all set up with his therapists and specialists that moving is very daunting. I’m not sure I could talk his mom into leaving her friends in Ohio and I know I couldn’t handle being too far away from him or our other grandchildren.

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Tyson loved the pool and we tried to go every day while there. At first, he was hesitant, but once in, getting him out was almost impossible. His Uncle Mike made it fun, taught him to close his eyes and hold his nose to go under the water. He loved jumping from the steps with his swim vest on and spinning in the water. This was a great way to expend his energy before our nightly dinners and almost always ensured he would drift off to dreamland.

When your only living parent lives almost a thousand miles away, you cherish the time you have and if you are even a little bit emotional like me, find it hard to say goodbye. I kept my tears inside and thought about how blessed I am to still have our mother here and so very thankful to have spent the 7 days with her. Great memories were made and all of her neighbors doted and loved on Ty. Providing him with toys to use while there and yummy snacks any toddler would love.

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We visited a great Thai rolled ice cream shop in downtown St. Petersburg called Ice Burg. We watched as they made the specialty treats. It was worth the drive downtown just to try it out! Very filling for low prices.

We ventured to a fenced in play area near Gulfport beach in Pinellas County and Ty was able to access a small beach area with sand and shells. For the past few months all he has talked about was going to the beach and building sand castles but as it turned out, that was the only beach he would visit. He didn’t want anymore to do with beaches only the pool. Maybe one day he will relish the sand and surf.

You never realize how much you miss your mom’s home cooking until you are eating it. We ate out twice while there..the rest of the time was savoring the smells wafting in the air as she prepared meals. My mom is an amazing chef!

As we embark on the road trip home, I’m so very thankful to Jesus for keeping us safe. We’ve been on the road for over 8 hours now and thankful my husband and sweetheart is good at driving and navigation; he used to drive for a living.

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The biggest takeaway from this post. Enjoy the time you have with your family. Love one another, laugh and cherish each moment you are blessed to have.

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Don’t just pretend to love others. Really love them. Hate what is wrong. Hold tightly to what is good.
Romans 12:9 NLT

May you know how much Jesus Loves You~right now wherever you are!

Blessings~Carlene

#HopeAlwaysHaveFaith