Monthly Archives: January 2019

HIS Peace

Proverbs 3:5 New Living Translation (NLT)
5 Trust in the Lord with all your heart;
do not depend on your own understanding.

I feel like I’ve been gnawing my way through tons of emotions this week to remember to trust in the Lord and realizing His ways I may not always understand, but He is in Control. Of EVERYTHING.

I love Jesus with all my heart. There is absolutely no doubt about that. I know HE is the God of Peace. I know He is Good. I know that many things happen in our lives and lately I have felt all alone, even when surrounded by those that love me.

I guess it’s some type of depression. I haven’t dealt with depression for me very much and so I have tried to banish it from my mind. I’ve lived with others that have depression and have lived with it for many years and I truly don’t know how they manage to make it through every single day, unscathed.

I know that I have always been able to turn to the Lord and He comforts me. He reminds me I am loved and no matter what I am in the midst of it is only temporary.  I cling to that hope. I hold on so tightly that sometime’s the tears don’t stop.  But no one sees the tears because I have learned to hide them. Even if they see tears, there is always an explanation of why. No one suspects anything. But hiding this depression isn’t helping me and it certainly isn’t helping anyone around me.

I am up late, usually alone, soaking in the silence and hanging on because once I go to bed, I don’t want to get up. I want to sleep.  Sleeping is easy because then I don’t have to face all the high stress in the house. High stress of living with a special needs child that creates stress for the rest of us. Stress, none of us, seem to be able to get a grip on. And as much as I don’t like to use the word worry, lots of concern over if our happy little guy will ever be back again. If his appetite will come back. If he will want to eat foods again that he used to love and were good for him. If he will learn how to control the sensory overload and not go on a rampage throwing toys, breaking objects, trying to hurt himself and hurt others. And while I pray about this and I think about it every single second I am awake, life goes on.

My friend Mary went to be with the Lord eight days ago. I grieve for knowing I can’t talk to her anymore, her children don’t have their mom to hug and hold, her husband must go on without her and all the people whose lives she has touched, have this deep sense of loss just as I do. But Mary knew her time was near. She had visions of being with Jesus. No matter how painful her last few days were, cancer could not destroy her spirit. She fought her short battle with so much grace and dignity, I can only hope I can go as peacefully when my time comes.  And I know I will gaze upon her face in the future. I know she is with our Lord and Savior, dancing and singing in Heaven showering Him with Praise and totally pain-free. And that gives me peace.

In 4 weeks, more or less, there will be a new life in our home. I am so excited to meet our newest granddaughter, but I am cautiously optimistic because I am concerned about how her brother will react when she cries. Will, he still gaze upon her as he does every other baby he sees with such awe and wonder? Or will he not understand and act out? Will he be gentle and kind, or will he………?

New therapy and new medications have started and I am believing this will be the missing pieces along with continued love and support to help our little guy gain some understanding of what works for self-regulation. For ways to cope when the noise becomes too much for his little body to handle all by itself. Sensory tools are being used in the home to help too. A new sensory swing that he now requests. A new “favorite game” he calls it. He lays on the couch and I lean back across him, applying pressure, for only a few seconds, several times in a row. And then he seems to feel better. And in those moments, we have peace.

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Photo by Bri Schneiter on Pexels.com

Even as I write this, I feel a peace settling in around my heart. A peace that only comes from God because, without Him, I would be a wreck of a human being.  I want this peace to become so much that nothing shakes me to the core. I used to have that peace and slowly, I let the distractions in my life, chip it away bit by bit. This last week has been proof of that. Thoughts that come to mind and I send them fleeing because they are not thoughts from my Lord. Words unspoken, because I realize we all deal with our emotions so differently and words hurt. Even well-meaning words can have an effect that nothing good can come from.

I consciously choose to love through it all. And I also consciously know without Jesus, His grace, His forgiveness, His love, and His mercy, I would be a jumbled up ball of emotions, shaking in a corner and wishing I could go home too.

I don’t like being depressed. Or even sad. I know the enemy would like nothing more for me to succumb to it. But the one thing satan seems to forget is I am a God girl and there is nothing he can do that will ever change my mind, my heart or my soul. I am a Princess of the King of Kings and I know my God is bigger than anything I will ever face.

Lord Jesus,

Thank you for loving me unconditionally, no matter what type of emotions or circumstances I find myself in, You are always there. You hold me up when I feel like I am falling. You strengthen me when my strength is gone. You give me peace where I can’t find any. You battle for me in the realms where I cannot go and Your love endures forever. Your peace no one can snatch from me. I hang onto the hope Father that you have plans for my life, plans to prosper me and not harm me, plans to give me hope and a future. You give me people to counsel me and share their testimonies of what a faithful father you are. You will never abandon me, or leave me. I love you, Lord! Father God, I ask that you forgive my unbelief when I doubt that you are working in my life. When I can’t see past the hurt and sorrow, when I weep, I know you are still working in and through me and on my behalf. In Your Mighty and Powerful name, Jesus. Amen

Jesus Loves You~right now and always. He can turn any mess you are in, into a message and any test you go through into a testimony! #HopeAlwaysHaveFaith

Blessings to all ~ Carlene

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Prayers for Mary

**Note: Mary went to be with the Lord early this morning (1/11/19). This was originally posted on 1/10/19. She is in no more pain, but remained faithful in trusting the Lord in all. She was full of grace, dignity and peace as she went home.

Please keep her family in your prayers.

Thank you.

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Hello readers, today I choose to use this platform to ask for prayers. Prayers for very dear friends of mine.

My friend Mary has been struck with a very aggressive form of unknown cancer and is fighting with all she has to live. It could be hours or days, only God knows when her time on earth will end.

There are hundreds of friends, family and unknown prayer warriors standing in the gap for her and interceeding for a miracle.

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Her husband and two teenage daughters are with her. We know that at any time Jesus can change the direction of the course she is on.

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They are hanging onto hope and praying God’s Will for her life. We will continue to pray and cry out to the Father for His Healing touch.

Lord Jesus, 

We come today to thank you for the gift of Mary. For the light and witness she has been to each life she has crossed paths with during her lifetime. We stand on the Promises in Your Word that if we earnestly seek you, knock and ask You will hear our prayers and answer. Holy Spirit, we know You have a plan for each of our lives, a plan to prosper us and not harm us, a plan to give us hope and a future.We fervently seek You and ask that all disease in her body, cells, and every system You created and designed be restored to perfect health and any and all strongholds of negativity and evil be broken and crushed with Your Mighty Hand!  Please continue to strengthen each family member and pour out Your Peace upon each of them. By the Power and Authority in the Name of Jesus. Amen 

Thank you.

*posted with permission from the family.

Jesus loves you ~ right here right now. He can turn any mess into a message and any test into a testimony! #HopeAlwaysHaveFaith

Blessings to all ~ Carlene

 

 

 

 

Living in a Battle Zone

Genesis 1:27 New American Standard Bible (NASB)

27 God created man in His own image, in the image of God He created him; male and female He created them.

 

Constantly aware. Ever vigilant. Exits secured. Dodging bullets (nerf bullets, toy trucks, sippy cups, shoes, metal toy cars, anything that can be used to target a person or glass screen, window or door). No bunker to run to for safety. No place to retreat to escape the torment. Physically or emotionally. The only place to retreat is Jesus, crying out for shelter and rest as tears tumble down your cheeks. Mentally trying to figure out your next battle plan, strategy to calm the attacks. Weeping because you are exhausted of this every single day.  Thankful that 28 days ago, there was a truce of sorts. No battles, no lashing out, no rage at all. A day of peace with quiet, but sad because that was a day he wasn’t feeling good and just wanted to be held and cuddled. Wouldn’t let you let go, because he feels most secure when he’s close and held tight.

Sounds and noises we cannot hear, whether we have tuned them out because we have the ability to filter out noise or because we aren’t gifted to hear such quiet noises he can hear. The moment the gas furnace comes on before we can hear it before we can feel the hot air coming through the floor vents, he rushes over and is fearful, asking “what’s that noise?” but I hear nothing out of the norm. A few seconds later, I hear it chug to life and feel the heat. I assure him it’s nothing to be afraid of, it’s just the furnace (in the basement far from where he hears it).

Investigator of all. The coffee pot full of HOT coffee. The toolbox with sharp tools, that can’t be locked. The dryer that is big enough to climb inside. The vacuum that might need a new belt or part. The stovetop where he can cook his play food.  The step stool he tries to stand on to reach something that has been put up high, out of his reach. The tablet or smartphone that he probably knows how to operate better than us. There is never a time we can let him out of our line of vision. Because no matter how many times we say, STOP or DANGER he will still reach for them or climb on it.

Constantly moving, sits for YouTube videos and when he is in his car seat with a locked chest clip and buckle guard, so he can’t escape while the vehicle is moving or in his specialty stroller with a built-in torso vest and extra fasteners. Activities that once held his attention painting, playdough, putting puzzles together, coloring, matching sequences, matching objects in a memory game, no longer appeal to him.

Body slams into people and walls, gates and furniture. Climbing and jumping off of anything he can. Sliding down the stairs on his stomach face or feet first. The faster and harder the surface the better. Hitting and punching, pulling your hair, grabbing your eyeglasses off your face, biting, throwing his body on the floor, banging his head. All the while, trying to stop him from doing things to hurt himself or you. Holding him tight, hugging him, playing music, counting out loud, letting him swing, offering his trampoline, suggesting he spins himself around or jumps up and down. Let’s make a tent so you can hide in the darkness.

 

Houdini wanna-be. Made it past adult the other day, out the back door wearing a pull-up only. No clothing/coat or shoes. Hates clothing. It was 34 degrees. He didn’t get far this time, I was in the driveway. Doors are secured with locks at the top, every single door in the home, but where there’s a will, he always seems to find a way.

Sleep is either totally out or restless. There is no in between. If he goes to sleep too early in the evening (9pm), he’s full-on awake by 1 a.m. If he waits to go to sleep later in the evening, he’s too tired to function in the morning hours. Night terrors since birth. Some doctors say he will outgrow them. Cannot sleep alone due to health conditions. He co-sleeps with his mommy or me, so at least every other night, we can get some rest. Sleep only comes with the help of prescribed medication, otherwise sleep is like that of a newborn baby, constantly up and down all night.

Psalm 139:13-14 New Living Translation (NLT)
13 You made all the delicate, inner parts of my body
and knit me together in my mother’s womb.
14 Thank you for making me so wonderfully complex!
Your workmanship is marvelous—how well I know it.

Many prayers prayed throughout the day. Not to make him better, but to help him. Help him figure out why he acts the way he does, how to control his moods and impulses. Show us how to love him through it all in a calm manner. Help us figure out what sets off the explosions, the sensory overloads, the meltdowns, the anger. Help us know when he is in pain, help us to soothe the noise. Help us to respond and not react. Reactions are normally based on emotions and emotions ride very high when you feel like from the minute you wake up until you lay your head down for the night you live in a battle zone. Responding in love and compassion and words that lift up are always much better, even if it takes him a while to process it.

His brain is wired differently than ours. He sees the world differently. That’s okay. We need to learn how to teach in a way that he learns. In a way that he hears. Our expectations can’t be set so high that we set him up to fail before we even start. And we also can’t see our parenting skills as a failure. We know we are doing the best we can. He has one parent and two grandparents that care for him daily. That battle with him daily. That on occasion, we laugh and giggle with him daily.

We miss our happy-go-lucky boy. We miss the one that used to love to build block towers, play with toy cars on his toy race track, blow bubbles. We miss sitting and watching Paw Patrol and Blaze and the Stuart Little Movies over and over and over again.

We miss the child that used to love all types of food, raw vegetables, cooked ones, all types of meats, dairy products, foods that fueled our bodies. Now his main staples are chicken nuggets, chips, cookies, and juice. Occasionally a yogurt sneaks in. And cold cereal.  We miss the child that used to drink his liquids the right way and now we must watch him drink and make him swallow it or he will spit it out on himself, you or the floor, table, wherever he can.

We miss the child that didn’t seem angry and upset all the time.  We know he is still in there because we see glimpses of him.

We miss the days when he didn’t have to take medication unless he had a fever or an infection of some sort. Now he takes medications to prevent seizures from happening on a regular basis. Medication to help him fall asleep and stay asleep. Medication to help him focus and not be so aggressive. And I often wonder with all the medication he is taking, the constipation it causes him to have isn’t a source of the battles. We will find out more at the end of February when he goes to see a GI specialist.

When we are in public, we pray he will have a good time. No throwing himself on the floor. No knocking merchandise off the shelves. No meltdowns. But when he sees his developmental doctor, although we don’t want him to have problems, it would be nice if just once they could visualize the outbursts of aggression so they could understand it’s not just him having a bad day.  All of us have bad days from time to time.  Days we want to stay in bed, pull the covers over our heads and skip participating in life that day.

BUT, even with all of this, we are very grateful for how far he has come. Two 1/2 years ago there were no words. No way for him to communicate with us at all. And during this time he has had to endure extensive speech therapy every week. In-home therapies.

Soon, he will be starting ABA services. In hopes that they can reach him and help him and help us to live a little bit more of a peaceful existence.

We will continue to fight the battles and strategize the best way to live our lives with this amazing little boy. He is truly a blessing in our lives. We would never want to imagine him not with us, no matter how hard it can be.

Having a child with special needs requires a lot of perseverance and a whole lot of patience and never-ending unconditional love. And a grandma like me, that isn’t afraid to pray over him daily that Jesus will help him to understand the world around him and that the world will understand and love him just as much as we do.

In four days, his back to school will resume. The winter break has been brutal. His routines thrown out the window. And it will take him a couple of weeks to get back into that routine. Most families cherish winter and spring breaks, a time to refresh and rejuvenate and all I have been praying for is when the day comes to put him back on the bus and sit down with my feet up for a couple of hours and just rest in the peace and quiet.

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Photo by Pixabay on Pexels.com

So, the next time you hear someone say that being a special needs parent is much the same as being a combat soldier, their not downplaying the role of a soldier in combat, but relating the stress levels are just as high. If you know of a family that has special needs individuals, ask if you can help. If you are a special needs family, don’t be afraid to ask for help and support.

Love one another, through the good, the bad and the ugly. Show grace when you feel like you’ve failed. You are doing the best you can. Seek the Lord and His guidance. PUSH-pray until something happens.

Mark 9:22-24 New Living Translation (NLT)
22 The spirit often throws him into the fire or into the water, trying to kill him. Have mercy on us and help us, if you can.”23 “What do you mean, ‘If I can’?” Jesus asked. “Anything is possible if a person believes.”24 The father instantly cried out, “I do believe, but help me overcome my unbelief!”

 

Tomorrow is a new day. A clean slate. I cling to Hope.

Jesus loves you more than you will ever know! Jesus can turn any mess into a message and any test into a testimony. #HopeAlways#HaveFaith

Blessings~Carlene